A MAN born with a rare condition and who lived life to the full died suddenly at the age of 26.
Spencer Ronald Jordan died in his sleep on September 1, 2021, after taking an afternoon nap.
Mr Jordan suffered from a severe curvature of the spine, a rare condition, which gave him the physical appearance of ‘almost a child’, ‘man of small stature’.
His mother, Tracey Jordan told Bolton Coroners Court: “He was always a happy child, he was always smiling and went to a day centre in Halliwell on the day he died.
“There were no problems that day, he just came home as usual, he was laughing and was in a good mood.
“After having his tea, he liked going to his bedroom, where he has his TV and went to sleep because he was tired.”
After checking on him twice, the second time, Mrs Jordan knew something was wrong as he lay face down on his bed.
The inquest heard that Mr Jordan, who was found dead in his bed at his home in Winster Drive in Breightmet, Bolton, died suddenly of a rare disease of the heart muscle.
Dr Patrick Waugh carried out the post-mortem on September 8, 2021.
He told the inquest: “Mr Jordan had obvious kyphoscoliosis, which is a severe curvature of the spine. He had the physical appearance almost of a child, a man of small stature.
“There was no evidence of a haemorrhage or swelling of the brain, or any abnormality in the brain. Although the heart itself was small, it was normal, and the coronary arteries were also normal.
“You do not go into heart failure very suddenly, therefore Spencer didn’t have time to go into heart failure.”
“From this, unfortunately I am unable to give a clear cause of death except that he had issues with his heart, which may have caused a sudden arrhythmogenic death.
Giving a narrative conclusion, Coroner, Catherine Cundy said: “Mr Jordan lived a happy life and was well cared for by his mother, Tracey Jordan.
“Dr Waugh and Prof Bernard Clarke concluded what Mr Jordan had, was an extremely rare condition that they had never seen in their years of experience.
“The deceased was born with the extremely rare chromosome abnormality.
"On the balance of probabilities, Spencer died as a consequence of sudden arrhythmogenic death with chromosome abnormality.”
After the conclusion, Mrs Jordan said: "I just wanted answers on how he died, because he was fine that day. It's clear now that it was a sudden death. He wasn't unwell that day either, so it was a shock to me."
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